Under the current NHS England policy, patients who are having successful treatment with the medicines cetuximab or panitumumab may not restart treatment if they need a break longer than 6 weeks.
Steve, together with fellow patient Jo Weeks, has set up a petition which has already received over 40,000 signatures.
Please sign this petition so we can get this rule scrapped.
Steve was invited to write a guest blog for the eCRUSADers website recently.
In this blog Steve discusses how his experience as a cancer patient has enabled him to become actively involved in several clinical studies. He highlights the importance of actively engaging patients and the public in the research process from the outset.
Following the publication of the paper (see earlier update), Steve was invited to be part of the team presenting this work for the first time.
This webinar is part of the “Power of Population Data Science Webinar Series” for the International Journal of Population Data Science.
Steve’s presentation was on “Accessing health data for research – the patient perspective”.
Steve has just been confirmed as a Campaigns Ambassador with Cancer Research UK.
In this role, he will be meeting with politicians to discuss the CRUK campaigns and try to influence key changes for the benefit of people with cancer.
In April 2021 Steve was co-author on a paper in a peer-reviewed journal for the first time. As well as being a personal milestone for Steve, this publication highlights the fractured way patient data is collected and managed.
This important piece details the two year programme to bring together all 23 separate Scottish databases where information is stored on bowel cancer patients. This new dataset makes research far easier and quicker which can only be good for patients!
As part of Mindset Unfiltered, Alex Legouix talks with Steve Clark about how his positive approach has helped him cope with having advanced bowel cancer and has got him through several operations and six years of chemo (so far).
Steve is living a full and fun life as well as devoting much of his time to helping others with this disease.
There was so much to share that it’s formed three episodes and is definitely worth a listen if you or a loved one are facing cancer, or if you’d like to hear a truly uplifting story of how a positive approach to life can make all the difference.
Alex asks Steve about how a positive approach has helped him at all points.
Take a look at Season 2, Episodes 4, 5 and 6 on the link to the right or via your usual podcast route by searching for ‘Mindset Unfiltered’.
Steve has been presented a lifetime achievement award at the prestigious Communique Awards.
The HEALTHCARE COMMUNICATIONS ADVOCATE award is presented “to an individual who has made an outstanding contribution through healthcare communication throughout their career”. This is in recognition of Steve’s professional achievements as well as Strive for Five.
Steve was invited onto the charity’s podcast on CHEMOTHERAPY as an ‘expert patient’. In this episode, the BBC’s George Alagiah interviewed Steve and Professor Mark Saunders from the Christie Hospital.
This is a great series and well worth a listen by clicking the link to the right or via your usual podcast route by searching for ‘Bowel Cancer UK’.
Steve has been invited to be a patient advisor on the ACCELERATOR study. This exciting new approach to research in advanced colorectal cancer has the potential to make a big difference in the future, Steve is honoured to be part of this at such an early stage.